nº2
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No Meu Melhor
Que me recorde, houve só uma altura na minha vida após o transplante em que estive bem, e não foi há muito tempo atrás: sentia-me óptima. Como? Não estava absolutamente nada inchada (coisa rara para quem tem problemas cardíacos, e que me dava a sensação de estar muito mais magra), transpirava nos sítios certos (tenho Continue reading
About Me
I’m not a complete crap…
But inside… oh boy!
The chaos that goes on there!
I was born with a supposed heart murmur that completely masked my actual disability – I actually had a completely broken heart that continued to deteriorate until it had to be replaced by another one.
But that change didn’t make me a new person without problems: the broken heart made changes to my body, and in reality, what I needed was to have all my organs replaced and only keep my brain (this way I would still be myself, because grabbing all of this and throwing it away might be an option). But the doctors’ effort to keep me alive was impressive!
Do I deserve all of this? I thought about it many times. The conclusion I reached is… of course I do!
This blog is about the difficulties of living with a disability like this (heart failure, which extends to the whole body), and how this disability affects me and the world around me. And how the world we live in affects me, given this disability. I plan to write true stories – everyday stories, stories that I consider hilarious and stories that have touched me in some way.
There will be sad stories, but with a twist at the end. I will talk about what happened to me, how, and where. I will try to be true to my memory. I may also post thoughts. Since I am an activist, I cannot promise that these stories will be devoid of certain observations. Perhaps with this blog, I can help “wake up” someone, and, above all, help someone… Happy reading!
P.S. – The posts will be biweekly, but I may post more frequently. Subscribe!
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A crap Inside 